JUST ME RAMBLING

Curious about me?  Man, me too.  Well, to start, I am a 20 year old from Girard, PA.  I started this blog in December of 2020, with really no real plan; all I knew was that I loved to write and had a lot to say.  I will say, though, I definitely didn’t see it going this way… my life flipped on me in February of 2021.  I became bedridden and had to put my life on pause.  I’ve always been sick, since I was 7 years old at least, but it had finally gotten to the point where my life was no longer doable.  Prior to 2021, I found myself getting more and more sick, but it was always something I pushed to the side because I deemed my health as “unfixable” and “all in my head” after many years of searching for answers.  Thankfully, I didn’t fully give up.  

 

I found my current doctor in February of 2021, as well as first started getting per say “answers” in March of 2021.  I thought that once I got an “actual diagnosis,” I’d be cured quickly and able to resume life like normal; perhaps better than before, even.  Unfortunately, I am still not cured.  I’m hesitant to say I’m better than before, mainly because "better" can be taken multiple different ways, and well, honestly, some days I don’t feel “better” at all.  Healing isn’t linear… especially not with a chronic illness. 

 

I am often asked about my diagnosis, and I’m going to keep it a buck, I tend to dodge the question best I can.  It's not a simple, set in stone diagnosis, I wish it was.  It happens to be, more so, a collection of things multiple doctors have found through years and years of testing.  If you really want me to slap a name on it, I’d tell you Chronic Inflammatory Response Syndrome… but to most people, that label means next to nothing.  Essentially, my body is attacking itself, causing a stirrup of issues throughout my whole body.  Now, the cause?  Well, there is no way to really pinpoint it, but my multiple concussions as a kid caused me to have Traumatic Brain Injuries, then weakening my immune system allowing mycotoxins to enter my body; the most potent one being black mold, which is actually causing an autoimmune reaction in my body.  So yada, yayda, yada, I could go on and on about my gut or liver etc etc, but I’m going to leave it at that.  Realistically, all the other pesky little mysteries going on in my body were brought on by my head injuries and weakened immune system.  I suppose all that is important to know is that the main factor happens to be the concussions that I got half my life ago, causing my body to be more susceptible to mycotoxins in the environment.  But hey, at least I can walk into a building and immediately know if there is mold in it– canary in the coal mine type beat, eh?  

 

Nonetheless, I hope this can clear some things up about the ongoing mystery of my health.  We are still continuing to look for pieces that may be missing, as well as working through treatments to try to detox my body of any –and all– mycotoxins, as well as working towards healing my brain.  It is a slow, tedious process, but I believe I can finally say I am nowhere near where I once was.  Life is hard, and whether it is getting easier or I am just getting better at dealing with it, who’s to say, but I am thankful to be here, right now, writing this.  And I thank you for being here, right now, reading it.

 

I hope one day I can make some sort of difference, but for now, I will just keep writing.  I hope you enjoy my blogs, and maybe even happen to take something out of them.

 

So, here I am, how can I help?